First of all, THANK YOU, to my readers and everyone who has visited this website. In less than 4.5 years, and with no promotion except word-of-mouth, it’s hard for me to believe everyone is finding Knowlyme through search engines. But, honestly- that’s exactly how I found the information I’ve needed to recover from Lyme and continue to improve my health in all areas. I’m just glad that this website is helping so many people. It’s a humbling experience, and it proves that we are NOT alone- and we all have something to share with our Lyme disease experience to help other people. I learn so much from people about health related topics every day, if I’m really listening and paying attention! 😉
Secondly, I just found a great video from Gary Null I’d like to share about what foods and supplements are effective in fighting inflammation and therefore pain. This is good info for anybody dealing with Lyme and co-infections, as well as the average person who experiences pain, swelling and inflammation for any reason. Even injuries! I’d like to note that dairy and sugar have always created pain and inflammation in my body, and we all need to pay attention to how we feel after we eat certain foods so we can rule out what gives us problems. Every person is going to be slightly different as to what foods cause pain to flare up, as we are all unique with our genetics and our histories.
However- very common food sensitivities are to sugar, carbs (complex OR simple), wheat & gluten, soy, dairy (which is loaded with sugar, hormones, antibiotics, etc…), MSG and food additives, artificial flavorings (including “natural flavor”, ironically!), GMO’s and for some people meat and animal proteins. Gary is vegan, but I do still consume some animal protein, mainly in the form of grass fed beef, fish, chicken, and eggs. Nuts and seeds are also a huge part of my diet, as are good fats- like coconut & olive oil, and avocadoes.
Good fats are essential for the nervous and endocrine systems to function correctly, among many other things- they are NOT the bad foods we have been led to believe. Processed oils and fats (such as margarine, vegetable oil, transfats, etc…) cause a LOT of problems in the body, including pain and inflammation that can lead to many diseases and illnesses down the road. Eggs are a favorite food of mine, containing good fats (and even cholesterol, which our body needs and levels CAN get too low, believe it or not) and also lecithin, which helps our bodies digest and assimilate the fat and cholesterol in the egg.
Please enjoy this video, which is full of many different ideas on how our foods can be our medicine, like in the old adage, “Let thy food be thy medicine and thy medicine be thy food.” In other words- eat the right foods and there is no need for medicine!
In my next post, I’d like to talk about natural supplements that have anti-inflammatory properties. Gary Null does mention some in the video, as well. There are so many natural things to reach for in both food and supplements that can nip pain and inflammation in the bud. This can greatly reduce or eliminate the need for pharmaceutical pain-killers and anti-inflammatories, both of which often come with some hefty and very serious (even deadly) side effects. Tylenol ALONE causes over 40,000 deaths a year… Yikes!!! And that’s just the tip of the iceberg.
I knew a woman who took Aleve every day for years, with no problems until one day she started bleeding internally and almost died before she could get to the hospital. The doctor told her she was lucky to be alive, after losing so much blood. So, we’re not just talking about feeling better and being healthier by reducing our dependence on medicines, this includes living longer and more vital lives as well. Most of the anti-inflammatory foods and supplements also have anti-aging properties (because inflammation speeds up aging and leads to premature death). So we can also look better while we’re feeling better, too!
This doctor sees a connection between Lyme disease, vaccines, and viruses:
Before I was reinfected and finally diagnosed with Lyme disease after 20 years of being misdiagnosed, I remember the last vaccine I got to work in a hospital making me terribly ill- Hepatitis B. And yes, this vaccine/virus is on the good doctor’s list. After knowing two people who almost died after getting a regular flu vaccine (before the swine flu strain was added, making it even more dangerous!), I certainly don’t plan on getting any more vaccines. This means I won’t ever work anywhere vaccines are required for employment. Getting the Hepatitis B vaccine and the resulting malaise caused me to have to leave my job, anyway, so whatever immune system damage and long-term health issues caused by this vaccine/virus definitely weren’t worth it. I’ve learned a lot about vaccines and vaccine damage since then, and I suggest anyone with Lyme to do your own research on this topic.
Dr. Thomas Rau’s theory on how viruses and vaccines act with the Borrelia bacteria to cause the Lyme disease symptoms could explain why some people who get bitten with a tick carrying Bb show symptoms, either acute or later, and why some people never show symptoms. He believes that the Borrelia bacteria ALONE does not cause Lyme disease.
Vaccines, viruses (and other co-infections), trauma, toxic loads- all these things PLUS the Lyme bacteria, Borrelia (Bb), determine what symptoms an infected person may have. So, these things in combination cause the symptoms we call “Lyme disease” and maybe not any one of these factors alone? This would definitely make it harder to diagnose, research, and treat by the average doctor, as we all know by now. I’m interested in learning more from Dr. Rau and from everything I’ve learned over the last 5 years (after Labor Day) of being diagnosed and researching Lyme disease, what he is saying rings true with me. There is MUCH more in Lyme than just the Bb spirochete bacteria.
I lost a dog last year to Lyme disease, a 5-year-old in the prime of his life (he was 40-42 in dog years), after he was given a leptospirosis vaccine which is also a spirochete- just like Lyme. This vaccine weakened his immune system enough during a cold/wet winter to let the latent (lying dormant in his system) Lyme become active. As we all know, Lyme like any other pathogen is opportunistic, and often waits until the infected organism is weakened by other factors- stress, trauma, other pathogens such as viruses/bacteria, vaccines, toxins, etc… The vet seemed just as ignorant as the human doctors in this area on how harmful vaccines can be, and equally ignorant in diagnosing and treating Lyme. It was a brutal lesson (after seeing 3 other dogs die too young from Lyme) to watch my sweet dog die right before my eyes and not be able to do anything about it. My heart goes out to anyone with sick children, Lyme or otherwise. I can’t imagine being any more devastated than I was at this time. My dogs no longer get the normal schedule of vaccines, due to this.
I’m planning on getting and reading Dr. Rau’s book that outlines the treatment he uses at his clinic, The Swiss Secret to Optimal Health: Dr. Rau’s Diet for Whole Body Healing.
See original article that sparked this post, “Lyme disease symptoms fueled by vaccines”:
And, I also recommend this article on the Natural Health 365 website, “Defeat Lyme disease without antibiotics”:
So, this is my 4th Lyme Disease Awareness Month since getting re-infected and finally diagnosed in 2010, after 20 years of being un- and mis-diagnosed with Lyme disease. If there is only one thing that you read on this website, go to this LINKS page where I explain how I beat Lyme disease, naturally. I hope that this information helps even just one person not have to be sick and suffer with undiagnosed and/or untreated Lyme disease for as long as I did. That’s why I have this awareness site and pay for the domain name, in hope that it will make it easier for those in need to find this vital information. I continue to pray for all of us who deal with Lyme and other tick-borne diseases, in ourselves or our loved ones.
Happy 4 year anniversary to Knowlyme.com!!!
Thanks to all my readers and followers, for being part of my journey. My focus from now on will continue to be genetic, metabolic, and nutritional issues that have contributed to chronic Lyme disease. Right now, I’m in remission but continuing to take the colloidal silver, as I have for over 4 years. That’s proof to me that it is safe and I’m also not blue from argyria. 😉 I believe that understanding the genetic mutations and correcting them will be the final cure. Hoping we all get the answers we need on our healing journeys. Keeping you all in my prayers…
Just a quick note to say that the product in the last post is working well for me and my family member who previously had a histamine reaction (hives & swollen tongue) with the 1st sublingual liquid I tried. That as well as the sublingual tablet I subsequently used gave me insomnia, and all the reactions I believe are tied to the artificial “Natural Flavor” and preservatives. So far, the “Garden of Life” brand “Kind Organics” B12 spray (that I use sublingually for better absorption) is working so well I’m starting to work out every day for the first time since I was re-infected in Sept 2010. I’m also finally sleeping better.
Last week, I had a 4 day headache that was reminiscent of the herxing/detoxing reactions I had with the silver, especially during the first year or two of treatment. I haven’t herxed or detoxed on silver so long, it caught me off guard although I had read about methyl-B12 (methylcobalamin) opening up the detox pathways and causing some log-jams as the body tries to process the extra load. Taking methylfolate (instead of folic acid) and P-5-P (methyl B6) along with the B-12 no doubt threw me into a herx that I wasn’t really prepared for. Let’s face it- all I know to do is hunker down and wait for it to pass…
I’ve had exercise throw me into herxes and flare-ups before I even knew I had Lyme- anything that increases circulation and boosts the immune system can cause this: exercise, silver, or methylated B-vitamins. That’s my experience, and I’m sharing it just in case this has happened to anyone else. It can be confusing, since the things we do that should be good for us leave us feeling worse and defeated, at least until our body is able to adjust. This is for me where addressing the root cause of dis-ease is different than treating symptoms (which can make us feel better for the moment, often by numbing it out and with a price to pay of more advanced illness, later on). With 4-1/2 yrs of fighting this fight, at least I know what’s going on, and I know if I hang in there, it does get better. 😉
No results back on the MTHFR genetic testing- but with the herxing/detoxing, I can tell that the 3 methylated B-vitamins I’m taking are helping. In a way, I’m glad the report isn’t back, so I can continue to read my body and intuition on what is working and what is not. It also makes sense why the food-grade diatomaceous earth I tried years ago was poorly tolerated (as is alcohol of any kind- wine, beer, anything gives me a terrible reaction). I believe that it worked TOO well, and my body wasn’t able to detox the dead parasites fast enough, even with a teeny, tiny amount. So evidently, MTHFR mutations need to be addressed first, and probably others I’m yet to learn about? Healing, it’s a journey…
I hope everyone is enjoying Spring, and Happy Easter ahead of time!!! 🙂
Since I last wrote, a relative who tried the Solgar Liquid B12 w/B-Complex had a histamine reaction that put her in the hospital. I don’t know if she’s got Lyme, but there’s a good chance she has MTHFR since I can see multiple symptoms in both sides of my family. It’s the 4th time she’s had a severe enough case of hives and tongue swelling to seek medical attention, so the first 3 times didn’t have anything to do with the sublingual Solgar B12. There’s also a chance that this 4th time was unrelated to the supplement, as she is prone to histamine reactions, but it got me thinking, “Why?” That’s just how my mind works, LOL. PLUS, I’d been feeling better since starting on the B12, except for sleeping. Another person I know (no relation) started sublingual B12 and told me she’s been feeling a lot better, mood-wise (I have too! 🙂 ) AND she’s been sleeping so much better. Hmmm… Could I be having an adverse reaction, too? It was an eye-opener that made me ask a lot of questions in forums about B12 and histamine reactions. Turns out, we aren’t the only ones!!!
At first, I was focused on B12, itself. It’s supposed to LOWER histamines in the body and help with allergies. So, I was very confused as to why my some people, my relative and I had problems… Her doctor even told her it couldn’t be the B12, when she told him that was the only thing that she had started taking recently. Regardless, I suggested that she stop taking it until we figured out what was going on, just to be safe- above all else, DO NO HARM, right? I couldn’t live with myself if she ended up having a life-threatening allergic reaction, as one of her previous episodes has been! It wasn’t until then that I realized my sleeping issues were so much worse, and I had chalked that up to having extra energy. Plus, I’ve been researching B12 and MTHFR for hours a day, like I always do, often into the wee hours of the night. It’s been hard to shut my mind down, before, and insomnia has been one of my main issues (and it’s very common with both MTHFR and Lyme).
So, what I concluded was that the other ingredients in both sublingual products that I was taking (the Solgar liquid and the Jarrow tablets) were the culprits and NOT B12. The chemicals added to both products- such as potassium sorbate, citric acid, stearic acid, and magnesium stearate- as preservatives have caused allergy/histamine reactions in sensitive people. Also, the “Natural Flavor” found in both sublinguals is HIGHLY suspect. Normally, this listing is used to hide chemicals that really aren’t that natural at all. Let’s be honest- often, it’s used to hide MSG, and I know that from cutting out most processed foods. MSG can definitely cause histamine reactions, and has caused sleep issues with me, before. With a sublingual product, there’s a good chance that it is added to enhance the flavor, since we are holding the B12 under our tongues, and not just immediately swallowing. But, as discussed before, B12 is often malabsorbed in the gut. So…
This is the only organic sublingual (if you spray it under your tongue) that I’ve found to replace the other two in my last post that I can no longer recommend. I even contacted the company to make sure the “Organic Natural Raspberry Flavor” isn’t really something altogether different. Without the word “organic” I wouldn’t use this product, but they still had to assure me that there was nothing in that listing other than organic raspberry fruit or juice. From researching MSG before, I do understand that organic products by definition should not contain it, unless it naturally occurs in the food itself. So far, I am starting to sleep better, so we’ll see how it goes, as I get the other gunk cleared out of my system. Just sharing here in case anyone else has a bad reaction. If so, it’s more than likely not the B12 itself, as even in high doses it’s considered to be non-toxic. It does pay to read the fine print on not just our food, but our supplements, as well.
The bottom line is that having Lyme can cause us to be sensitive and react badly to many foods and chemicals that most people show no reaction to. B12 deficiency, from what I’ve read, can make histamine levels rise and exacerbate allergies and asthma. Associated with both (and chronic infection in general), low adrenal function ( adrenal exhaustion/fatigue) can make this worse since cortisol, aka adrenaline, helps to control histamines and inflammation in the body. MTHFR, which causes the body to not be able to use B12 (and properly AND causes immune system dysfunction (as does Lyme), also causes detox issue due to under-methylation. It makes sense to me why I am so sensitive to chemicals in my food and the environment! When I get my MTHFR results, I’ll know for sure.
Until then, the organic B12 spray will be the only sublingual that I can recommend to anyone with food or chemical allergies, histamine intolerance, MTHFR, and other methylation issues. However, I’ve only been taking it for 2 days. Time will tell, and I’ll keep you posted! Please let me know if any of you have had similar issues taking B12. Thanks 🙂
The lesson here is that it pays to read the fine print!
Lots of research done since my last post on B12, and things like mood, sleep, and energy levels are much better than they’ve been- probably ever! LOL, have to laugh… I found out that up to 40% of the population carries the MTFHR gene mutation, which causes our bodies to incorrectly produce an enzyme, methylenetetrahydrofolate reductase (or MTHFR for short), which works with the B-vitamins to process them so they can be used in essential chemical reactions such as energy metabolism. So, it is possible to have HIGH blood serum levels of B-vitamins (such as B12) but to have this genetic mutation where your body can’t use them properly! Hmmmm…. I know it sounds complicated because it is, and I wish I’d been able to finish school and all those organic chemistry classes I was taking right after I got Lyme. 😉 To keep it simple, I am sharing with you that I ordered a genetic test 2 days ago that was shipped today (YAY!!!!) for $99 from a website called 23andMe.com that should be able to tell me if I have the MTHFR gene mutation, and whether I have 1 (heterozygous) or 2 (both, homozygous) genes for it. This will be helpful in my quest to understand more about how B-vitamins and their real or functional (through this mutation) deficiency could be contributing to my struggle with Lyme.
This is the recommended B12 for MTHFR ***I no longer can recommend this product, edit 3/21/15, SEE NOTE***, Methyl-B12, and not the cyanocobalamin that I originally got (because methyl-B12 is the bioactive form, and the other is synthetic!). However at this point, I’m still taking the Solgar sublingual liquid (cyano-) when I first get up, and then one of the Jarrow Methyl B12 lozenges around lunch time, for now. I did order some methyl-folate (who knew folic acid was ALSO synthetic?!!!) which should be here, soon. So, just keeping you posted on what I’m learning, at basically real-time. This MTHFR business makes so much sense, given that it primarily affects BOTH body systems that Lyme affects the most (but they do affect more than just these two, of course)- the nervous and immune systems, and could weaken the immune system to be vulnerable to Lyme or any other opportunistic infection(s). I’ve heard about MTHFR before, but just recently with the elderly family member who is suffering from B12 deficiency, a genetic link seems possible and highly probable. Now is the time to study up and get tested, myself! For $99, it seems like such a good deal, compared to all the other basically useless testing I’ve gotten in the past (or expensive testing I just couldn’t afford- I can’t afford NOT to get this now, given what I know!). More info coming, but just wanted to share my journey, now, in case it can help anyone else, here. Praying for you all, God Bless!!! O:-)
ps- A good page on MTHFR and the testing, reports, etc…
pps- Just SOME of the health conditions that MTHFR mutations can cause (but not all):
***NOTE*** Since starting the Jarrow B12 tablets, my sleep started to suffer. Please read the next post on why I think this happened. Click here to read post about “Lyme, B12, MTHFR & Allergies”, 3/21. I no longer recommend this product!