A Reference Laboratory specializing in State-of-the-Art Clinical and
Research Testing for Lyme Disease and Associated Tick-Borne Diseases
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I looked at the pics, I had one of those in 2002! A friend of mine has been raising awareness on this, I recognize a lot of the symptoms. How can I know for sure?
Hi, Michelle! The best thing you can do is find a Lyme-Literate Medical Doctor who can give you a proper diagnosis. I’ve got some information on finding one on my DOCTORS page. Or, maybe your friend knows of a good one in your area? If not, email me at knowlyme (AT) gmail (dot) com with your city and state and I can help you find one. My LLMD is about 4 hours away, but it is worth going to an MD who has special Lyme and TBD (Tick-Borne Disease) training and knows how to make either a clinical diagnosis based on symptoms or run the proper tests from the IGeneX Lab. If you had a bullseye rash in 2002 and recognize some symptoms, the sooner you can get diagnosed and start treatment the better. Good luck on your healing journey!
I was diagnosed with Fibromyalgia in 1998 and after reading the symptoms it appears that I fit in to more than not.
I live in Boise, Idaho and was put on disability due to the above and numerous other medical problems.
I have been diagnosed with Raunauds, PAD, and have the tingling/numbness in my feet and hands. I have had numerous cyst removed and went through a period in 2007-2008 with severe swelling of my feet/ankles and lower legs.
I wouldn’t be reading this but my ex-husband lost his beloved daughter to Lymes disease and this was put on facebook so we could all educate ourselves and now I don’t know what to do.
I’m 64 yrs old and at one time had so much energy that I walked to and back from work and did everything in my home.
Please advise me what my next step should be and many thanks to you all.
Hi, Veronique… So very sorry to hear your ex-husband lost his daughter to Lyme Disease. I, too, was diagnosed with fibromyalgia about 15 years ago. Your best course of action is to find a Lyme-Literate Medical Doctor (LLMD) near you who can order the proper tests for Lyme Disease and other tick-borne illnesses that often accompany it. Please visit my “DOCTORS” page and use the links to visit pages where you can request a referral to a specially-trained doctor in your area. My LLMD diagnosed me with Lyme and another tick-borne disease (TBD), Babesia, which is very similar to malaria. This is what is called a “co-infection” that may also be causing symptoms in addition to Lyme Disease. It is very important to find an LLMD because the average doctor is not specially trained to identify Lyme Disease and other TBD’s because they are stealth infections that evade regular lab tests and so are difficult to diagnose.
LymeNet and SurvivorFriends, both links to online Lyme Disease support groups can be found on my “DOCTORS” page along with how to request a doctor referral. It is important to find a support group so you have people you can talk to about your symptoms and experiences- you are not alone! There are also many groups and pages on Facebook concerned with Lyme Disease. Only a Lyme-Literate Medical Doctor can help you know for sure if your symptoms are caused by Lyme Disease, and I hope you can find and visit one close to you. My fibromyalgia, chronic fatigue, and other symptoms have all gotten better after being treated for Lyme, but it can take months or years- depending on how long you may have been infected. Good luck in your healing journey, Veronique! I’ll be keeping you in my prayers, that you will find the answers to the questions you seek.
Veronique, I also wanted to suggest that you watch “Under Our Skin”, the award-winning Lyme Disease documentary. It explains so much about why Lyme is so underdiagnosed (only 1 out of 10 people who are infected know they have it, so that means 9 out of 10 people are un- and misdiagnosed).
You can buy it on their website:
or rent it for $3 on Youtube:
or if you have Netflix:
https://www.netflix.com/ ~there is a 1 month free trial 😉
I’ve seen it so many times and learn something new every time I watch it, it is so chock-full of good info. There are also several (free) excerpts and trailers on the Openeye Pictures YouTube channel:
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Promoting Lyme Disease Awareness One Person & One Life At A Time