Almost 4 Years Later!!!

First, I want to thank Angela for influencing me to start this Lyme disease awareness site in 2011, right before she passed (from complications from Lyme- we met online, and I’ll forever be grateful to her and still pray for her family every day!). You are my inspiration, and my Lyme Angel, dear Angela… RIP- and I know you are helping me from Heaven. I couldn’t have done it without you. Our 4-year anniversary of this website is coming up in April. Have to think of how to celebrate!!! ­čÖé

ps- I am so sorry to those of you who have left comments that I haven’t approved yet. There is a HUGE backlog and I honestly haven’t had the time to respond. However, I DO read your comments and THANK YOU from the bottom of my heart for writing me and sharing what you are going through. I do try to incorporate your questions into my new posts and research. I hope that one day I’ll get caught up, but until then, know you are being heard and you are appreciated. I am thankful for ALL my readers, those who comment and those who don’t. There are SO MANY people looking for answers and I’m grateful to be here and have the support of everyone who visits and shares my blog ÔŁĄ

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B-12 Deficiency and Lyme disease- Part 1 (#INSOMNIAfix?)

Unfortunately, I’ve become very aware of B-12 deficiency because an elderly family member has been hospitalized 3 times in the last 6 months from falling and weakness due to this. In her case, it is the Metformin aka Glucophage that she’s been on for Type 2 Diabetes that is causing the B-12 deficiency and secondary anemia. It’s so sad, because her family doctor seems oblivious to the cause of the anemia, and keeps trying to supplement iron when it’s the B-12 deficiency that is causing the red blood cells to not mature┬áor function properly. So, why is this important to me and ALL people with Lyme disease?

There are many reasons why someone can have B-12 deficiency. Diet (low in meat or nutrition in general- in my relative’s case, not having an appetite and not wanting to cook- so malnourishment also played a role, as it does with many seniors), genetics (some family lines┬ácould be┬áprone to B-12 deficiency or┬ámaybe physiologically need more than others), adrenal┬áburnout (which all of us with chronic illness have some degree of, Lyme and coinfections for sure!!!), stress and trauma (again, triggers adrenals which utilize B-12 to make cortisol at a higher rate, also disrupts absorption because stress┬áinterferes with┬ánormal digestive processes), taking antacids (lack of HCl in the stomach prevents proper absorbtion of B-12, especially acid blockers), drinking more than 4 cups of coffee per day (many people who are chronically fatigued and have lack of energy do this just to get by- me, if I drank coffee at ANY time of day/night, I’d NEVER sleep, LOL!), as well as taking other medications that deplete the levels of B-12 (including Metformin/Glucophage for diabetes as mentioned above, ***birth control pills***, STATINS to lower cholesterol, antibiotics such as the “-CYLINES” like Doxycycline, Tetracycline, etc… interfere with absorption if taken together, and medications for treating cancer and controlling seizures).

Even eating enough meat isn’t a foolproof way these days to get enough dietary B12 since the livestock are fed B12 deficient grains in most cases of modern farming practices. Grass-fed organic meat has more B12 than the factory-farmed meat most people eat by default. Another important point- even if there is enough B12 in the diet (vegetarians can get B12 from animal sources such as milk, yogurt, eggs, cheese, whey powder and yeast extract spreads such as “Marmite”- vegans, it would have to be supplemented and not sure there is a reliable non-animal source for B12?), having taken many rounds of antibiotics can wipe out the gut flora and disrupt absorption of natural B12. This applies to me, and most people who have been diagnosed with Lyme and/or other tick-borne co-infections.┬á I’ll write more on this later, because there are entire BOOKS written on B12 deficiency- such as “Could It Be B12?: An Epidemic of Misdiagnoses.” Substitute “B12” with “Lyme Disease”, hmmm… Ring any bells?

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Click to open in new window

B12 is SO important┬áfor over 100 chemical reactions to occur within the human body. It is VITAL for proper functioning of the immune AND the nervous system- the 2 areas that Lyme hits the hardest. B12 is imperative for proper energy levels &┬ástrength,┬ácognitive functioning, emotionally stability and mental health, healthy nerves, cardiovascular health, proper adrenal function (which affects ALL hormones)- and the list goes on and on… In researching B12 deficiency to try and help my family member, I have run across something my family AND Lyme MD have never tested or mentioned, despite so many of my symptoms that overlapped from Lyme to B12 deficiency. Migraines, insomnia, depression, allergies, asthma, aches and pains (especially in the cervical spine), memory and concentration problems, fatigue and low endurance- again, the list goes on and on.

So- I ran out to the local health food store today and got a bottle of sublingual B12, with B-complex (they all work synergistically), today. The ongoing stress caused┬áby having a┬ásick family member has been taking it’s toll- many sleepless nights or waking up worrying.┬áEven though I had been taking a B-complex AND P5P (the active form of B6, mentioned in my earlier Pyroluria posts), the amount of B12 in the B-complex was only 50 mcg: just a fraction of what I read is necessary for someone who has probably had a B12 deficiency for years, if not decades (yes, you can be born with it, if your mother is also deficient- my mom most likely is, as well). For all I know the B-complex I’ve been taking isn’t even bioavailable!?!!! ­čśŽ Sigh.

Sublingual B12- Click to open in new window

Sublingual B12

So, the supplement I got and took 2x today is: Solgar Sublingual Liquid B-12 with B-complex, 2000 mcg, Gluten/Wheat/Dairy free, and suitable for vegetarians ┬á***I no longer can recommend this product, edit 3/21/15, SEE NOTE***, (I am not a vegetarian, but have been in the past, for 6 years as a teenager- and I never felt worse until I started eating meat, again- now I know why, at least partly!). It got very good reviews on Amazon, but the reason I purchased this type┬áof B12 (cyanocobalamin- there are at least 4 other forms I have read about) is because of the delivery- sublingual, meaning it will be absorbed in the mouth if held under the tongue. This bypasses the digestive system, in case there is an absorption problem in my gut. Since treating Lyme and taking probiotics, as well as going off of dairy, gluten, GMO foods (soy, wheat, corn, etc…), and sugar, my digestion is 90% better than it was 5 years ago, but I wanted to be sure the B12 would become bioavailable ASAP. I will research the different forms and delivery systems more, but for now, this seemed to be the quickest way to see results, apart from B-12 injections.

One of the first things I noticed within an hour of taking the first 2000mcg under my tongue was that I started yawning and feeling more relaxed than I had in days! B-vitamins in general help with this, because they are so essential in helping the nervous system and body deal with stress, but I was astonished at how much relief I felt within 30-60 minutes. A few hours later, I took another 2000mcg, and experienced another wave of stress-relief and relaxation… Best $12 I’ve spent in a long time! What I’m hoping is that taking┬áB12 will help me resolve my most persistent symptom that predates Lyme (unless I was born with it, no way to know- but I was a pretty sick baby and kid)- the dreaded chronic INSOMNIA. It’s gotten a LOT better, since treating Lyme, BUT- any amount of stress can cause me to be up all night, or fall asleep and then wake up 2 hrs later, not able to go back to sleep… I will keep you all posted as time goes on and I have a chance to┬ákeep taking this new supplement.┬á I am hopeful because… (drumroll, please)… B12 is necessary for the body to produce melatonin!!! It also helps the body turn off melatonin production in the morning, to help increase wakefulness and┬áboost energy levels. Low levels of melatonin and low levels of B12 often go hand-in-hand.

B-vitamins can also increase energy levels and help combat fatigue, so I will┬áNOT be taking my last dose right before bed! ­čśë As I gain more experience taking B12 and do more research, I will report back with what I learn. One more symptom I have had that predates Lyme/Babesia is SAD or Seasonal Affective Disorder. B12 is also supposed to be helpful for this as well! MANY people in my geographical area have SAD. I am seriously eager to see this mood disorder resolve itself. Interestingly, my relative w/the B12 deficit also has suffered from sleep trouble and SAD! As much as I hate my dear 90 year old relative suffering from B12 deficiency, it has caused me to realize that I am most likely dealing with it, myself-┬ábut definitely to a lesser extent. Over time, B12 deficiency can cause irreversible damage to the body, along with the pernicious anemia it causes- and can even be fatal (causing heart attacks and strokes, to name a few ways it can lead to death)!

Blood tests aren’t always accurate in diagnosing the deficiency (hmmmm… sound familiar?), so I’m choosing to supplement now and see how my symptoms improve.┬áLab tests haven’t done much for me, but I know they do help some people. In my life, time and money are of the essence, and I don’t have any surplus of either to waste on tests that may or may not be helpful… Being sick has wasted enough of my time and other resources. Also, my MD is backlogged from a personal injury and having to take many months off work for therapy, so it would take months to get in to see him. Of course, I suggest that you do your own research on B-12 and go talk to your doctor about it.

A lot of Lyme patients are already getting B-12 injections or taking B-12 supplements. If you are- you’re ahead of the game!!! Let me know what works for you! From everything I’ve read so far, B12 is water soluble (like Vitamin C) and therefore, if┬ámy body has a surplus, it will be excreted through urine. The Linus Pauling Institute says that B12 is non-toxic even in high doses, so there is no upper limit of non-intravenous (oral, sublingual, etc…) supplementation. Good to know! ­čśë

***NOTE: This product has several preservatives and also “Natural Flavor” which can cause histamine reactions in some sensitive individuals, including one of my family members. Click here to read post about “Lyme, B12, MTHFR & Allergies”, 3/21.┬áI can no longer recommend this product!

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Does Colloidal (ionic) Silver Create Lyme Superbugs?

No- there has been no report or evidence to show that silver creates any resistance or immunity in the pathogens which are killed by it. Properly made, in my experience, there is no argyria (bluing of the skin) or side effects from a pure silver solution <30ppm (not above 30ppm, to prevent clumping or agglutination of silver ions, which create a less effective solution by increasing the particle size, thereby decreasing penetration power). The mechanisms by which silver kills pathogens are much like suffocation, or a decrease in cell respiration, leading to death. This is not something towards resistance may be built.

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In Remission from Lyme disease after 4 years of Colloidal Silver

Right now, I’m working with FasterEFT (much better and different than the original “Tapping” or “Emotional Freedom Technique”). Looking back, I can see that I have been symptom free except for periods of extreme stress- I am dealing with PTSD from childhood and have been working to heal that, as well. My belief is that in my case, it was the trauma, abuse, and PTSD which laid the foundation that Lyme/Babesia could take root in. ALL infections are opportunistic, waiting for stress or trauma to weaken the host’s immune system. This is why some people can be infected but asymptomatic… And they might remain that way for a lifetime and never even know they are infected, although they are carriers and probably vectors (through blood and sexual contact) of the disease-causing organisms (much like people who are vaccinated with live strains of pathogens). Or, an extreme stress or trauma may occur- the loss of a loved one, divorce, a car wreck (even a seemingly minor one), getting fired, filing for bankruptcy, etc… Then, the immune system is weakened and the stealth pathogens take the opportunity to strike the host’s body, so the symptoms emerge. The symptoms may come days, weeks, months or even years after infection, because the bacteria/viruses/fungi/parasites could have been held in check up to that point by a healthy & well-functioning immune system.

So, my stress levels have drastically decreased, due to a lifestyle change initiated by me (namely, avoiding dramatic situations and people). Having no symptoms in this time period has caused me to reflect back, and without having kept a symptom journal- I can see how stress-related my symptoms have been. In fact, I can’t remember when I last had pure Lyme symptoms… It is really impossible to tell. I just wish I’d made these changes sooner- but this is part of the gift of Lyme (and I want to see it like a gift, as it says in the Bible that God uses all things for our good- whether or not we can see how). Sometimes it makes us look at our lives and HAVE to make changes that are good and healthy for US, even if others do not approve of or appreciate them. Those who truly love us DO want what’s best for us.

FasterEFT (see videos in my last post) is helping me heal the stress and trauma caused by decades of repeating patterns that I learned at least as far back as childhood- maybe even further back than that? It is a tool to get to the ROOT of any disease or problem (not even health-related). It clears dysfunctional thinking patterns which cause negative emotions, and those emotions can wreak havoc on our bodies, our minds, and our well-being. There are so many free videos on youtube and the website fastereft.com, I’ll have a lot to work with. The regular tapping (EFT- Emotional Freedom Technique) that I had been trying off and on for years just didn’t quite work as well as this modified and simpler (quicker) version. I’m sharing this information with all┬áof you, in case it can help anyone. Anyone can benefit, with or without Lyme disease or a co-infection. We all have flawed ways of thinking that are holding us back and causing some kind of pain or suffering in at least one area of our lives (but probably more- that’s just part of being human!).

So, finally- I can say I’m in remission from Lyme. I will stay on a maintenance dosage of silver until I know it is safe to stop- I cannot afford a relapse. Silver is so easy and affordable to make, it really doesn’t matter to me how much longer I take it. There are no side effects, so I’ll be praying for guidance to let me know when it’s time to stop. Until then, I’ll be clearing patterns and strengthening my immune system, as well as achieving a happier and more peaceful quality of life by improving my thoughts, my belief systems, and my emotional state. And, I no longer consider myself a “Lymie”. I refuse to be identified with this or any disease, which I believe can be a dangerous thing for those of us who really want to get well and stay well. My focus from here on out is on health and wellness, joy, peace and all the good things God intended for me and for you! ­čśë

I hope the information on this website has been helpful and I wish you luck on your healing journeys. Anything else I find that helps me achieve better health and well-being I will share here for you. From this day forward- I consider myself living Life after Lyme, and I’m going to do my best to make the rest of my life the BEST of my life!!! ­čÖé

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FasterEFT curing Lyme disease, Electromagnetic and Multiple Chemical Sensitivities, Chronic Fatigue, & Allergies,

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Canadians Are Also Being Under Attack by Lyme Disease (Nature of Things)

If anyone knows a good Lyme Dr in the Edmonton, Alberta area- please let me know! ­čśë

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Ticked off: Making Sense of the Lyme Disease Controversy

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