Lyme, MTHFR, B12 & Allergies

Since I last wrote, a¬†relative who tried the Solgar Liquid B12 w/B-Complex had a histamine reaction that put her in the hospital. I don’t know if she’s got Lyme, but there’s a good chance she has MTHFR since I can see multiple symptoms in both sides of my family. It’s the 4th time she’s had a severe enough case of hives and tongue swelling to seek medical attention, so the first 3 times didn’t have anything to do with the sublingual Solgar B12. There’s also a chance that this 4th time was unrelated to the supplement, as she is prone to histamine reactions, but it got me thinking, “Why?” That’s just how my mind works, LOL. PLUS, I’d been feeling better since starting on the B12, except for sleeping. Another person I know (no relation) started sublingual B12 and told me she’s been feeling a lot better, mood-wise (I have too! ūüôā ) AND she’s been sleeping so much better. Hmmm… Could I be having an adverse reaction, too? It was an eye-opener that made me ask a lot of questions in forums about B12 and histamine reactions. Turns out, we aren’t the only ones!!!

At first, I was focused on B12, itself. It’s supposed to LOWER histamines in the body and help with allergies. So, I was very confused as to why my some people, my relative and I had problems… Her doctor even told her it couldn’t be the B12, when she told him that was the only thing that she had started taking recently. Regardless, I suggested that she stop taking it until we figured out what was going on, just to be safe- above all else, DO NO HARM, right? I couldn’t live with myself if she ended up having¬†a life-threatening allergic reaction, as one of her previous episodes has been! It wasn’t until then that I realized my sleeping issues were so much worse, and I had chalked that up to having extra energy. Plus, I’ve been researching B12 and MTHFR for hours a day, like I always do, often into the wee hours of the night. It’s been hard to shut my mind down, before, and insomnia has been one of my main issues (and it’s very common with both MTHFR and Lyme).

So, what I concluded was that the other ingredients in both sublingual products that I was taking (the Solgar liquid and the Jarrow tablets) were the culprits and NOT B12. The¬†chemicals added to both products- such as potassium sorbate, citric acid, stearic acid, and¬†magnesium stearate- as preservatives have caused allergy/histamine reactions in sensitive people. Also, the “Natural Flavor” found in both sublinguals is HIGHLY suspect. Normally, this listing is used to hide chemicals that really aren’t that natural at all. Let’s be honest- often, it’s used to hide MSG, and I know that from cutting out most processed foods. MSG can definitely cause histamine reactions, and has caused sleep issues with me, before.¬† With a sublingual product, there’s a good chance that it is added to enhance the flavor, since we are holding the B12 under our tongues, and not just immediately swallowing. But, as discussed before, B12 is often malabsorbed in the gut. So…

Please click here to go to product page

(Amazon.com link opens in new window)

This is the only organic sublingual (if you spray it under your tongue) that I’ve found to replace the other two in my last post that I can no longer recommend. I even contacted the company to make sure the “Organic Natural Raspberry Flavor” isn’t really something altogether different.¬†Without the word “organic” I wouldn’t use this product,¬†but they still had to assure me that there was nothing in that listing other than organic raspberry fruit or juice. From researching MSG before, I do understand that organic products by definition should not contain it, unless it naturally occurs in the food itself.¬† So far, I am starting to sleep better, so we’ll see how it goes, as I get the other gunk cleared out of my system. Just sharing here in case anyone else has a bad reaction. If so, it’s more than likely not the B12 itself, as even in high doses it’s considered to be non-toxic. It does pay to read the fine print on not just our food, but our supplements, as well.

The bottom line is that having Lyme can cause us to be sensitive and react badly to many foods and chemicals that most people show no reaction to. B12 deficiency, from what I’ve read, can make histamine levels rise and exacerbate allergies and asthma. Associated with both (and chronic infection in general), low adrenal function ( adrenal exhaustion/fatigue) can make this worse since cortisol, aka adrenaline, helps to control histamines and inflammation in the body.¬†¬†MTHFR, which causes the body to not be able to use B12 (and¬† properly AND causes immune system dysfunction (as does Lyme), also causes detox issue due to¬†under-methylation. It makes sense to me why I am so sensitive to chemicals in my food and the environment! When I get my MTHFR results, I’ll know for sure.

Until then, the organic B12 spray will be the only sublingual that I can recommend to anyone with food or chemical allergies, histamine intolerance, MTHFR, and other methylation issues.¬†However, I’ve only been taking it for¬†2 days. Time will tell, and I’ll keep you posted! Please let me know if any of you have had similar issues taking B12. Thanks ūüôā

The lesson here is that it pays to read the fine print!

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B12, MTHFR gene mutation, and Lyme disease

Lots of research done since my last post on B12, and things like mood, sleep, and energy levels are much better than they’ve been- probably ever! LOL, have to laugh… I found out that up to 40% of the population carries the MTFHR gene mutation, which causes our bodies to incorrectly produce an enzyme, methylenetetrahydrofolate reductase¬†(or MTHFR for short), which works with the B-vitamins to process them so they can be used in essential chemical reactions such as energy metabolism. So, it is possible to have HIGH blood serum levels of B-vitamins (such as B12) but¬†to have this genetic mutation where your body can’t use them properly! Hmmmm…. I know it sounds complicated because it is, and I wish I’d been able to finish school and all those organic chemistry classes I was taking right after I got Lyme. ūüėČ To keep it simple, I am sharing with you that I ordered a genetic test 2 days ago that was shipped today (YAY!!!!) for $99 from a website called 23andMe.com that should be able to tell me if I have the MTHFR gene mutation, and whether I have 1 (heterozygous) or 2 (both, homozygous) genes for it. This will be helpful in my quest to understand more about how B-vitamins and their real or functional (through this mutation) deficiency could be contributing to my struggle with Lyme.

Jarrow-Formulas-Methyl-B-12-790011180043

This is the recommended B12 for MTHFR¬†***I no longer can recommend this product, edit 3/21/15, SEE NOTE***, Methyl-B12,¬†and not the cyanocobalamin that I originally got (because methyl-B12 is the bioactive form, and the other is synthetic!). However at this point, I’m still taking the Solgar sublingual liquid (cyano-) when I first get up, and then one of the Jarrow Methyl B12 lozenges around lunch time, for now. I did order some methyl-folate (who knew folic acid was ALSO synthetic?!!!) which should be here, soon. So, just keeping you posted on what I’m learning, at basically real-time. This MTHFR business makes so much sense, given that it primarily affects BOTH body systems that Lyme affects the most (but they do affect more than just these two, of course)- the nervous and immune systems, and could weaken the immune system to be vulnerable to Lyme or any other opportunistic infection(s). I’ve heard about MTHFR before, but just recently with the elderly¬†family member who is suffering from B12 deficiency, a genetic link seems possible and highly probable. Now is the time to study up and get tested, myself! For $99, it seems like such a good deal, compared to all the other basically useless testing I’ve gotten in the past (or expensive testing I just couldn’t afford- I can’t afford NOT to get this now, given what I know!). More info coming, but just wanted to share my journey, now,¬†in case it can help anyone else, here. Praying for you all, God Bless!!! O:-)

ps- A good page on MTHFR and the testing, reports, etc…

http://www.stopthethyroidmadness.com/mthfr/

pps- Just SOME of the health conditions that MTHFR mutations can cause (but not all):

http://mthfr.net/mthfr-mutations-and-the-conditions-they-cause/2011/09/07/

***NOTE*** Since starting the Jarrow B12 tablets, my sleep started to suffer. Please read the next post on why I think this happened. Click here to read post about “Lyme, B12, MTHFR & Allergies”, 3/21. I no longer recommend this product!

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Almost 4 Years Later!!!

First, I want to thank Angela for influencing me to start this Lyme disease awareness site in 2011, right before she passed (from complications from Lyme- we met online, and I’ll forever be grateful to her and still pray for her family every day!). You are my inspiration, and my Lyme Angel, dear Angela… RIP- and I know you are helping me from Heaven. I couldn’t have done it without you. Our 4-year anniversary of this website is coming up in April. Have to think of how to celebrate!!! ūüôā

ps- I am so sorry to those of you who have left comments that I haven’t approved yet. There is a HUGE backlog and I honestly haven’t had the time to respond. However, I DO read your comments and THANK YOU from the bottom of my heart for writing me and sharing what you are going through. I do try to incorporate your questions into my new posts and research. I hope that one day I’ll get caught up, but until then, know you are being heard and you are appreciated. I am thankful for ALL my readers, those who comment and those who don’t. There are SO MANY people looking for answers and I’m grateful to be here and have the support of everyone who visits and shares my blog ‚̧

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B-12 Deficiency and Lyme disease- Part 1 (#INSOMNIAfix?)

Unfortunately, I’ve become very aware of B-12 deficiency because an elderly family member has been hospitalized 3 times in the last 6 months from falling and weakness due to this. In her case, it is the Metformin aka Glucophage that she’s been on for Type 2 Diabetes that is causing the B-12 deficiency and secondary anemia. It’s so sad, because her family doctor seems oblivious to the cause of the anemia, and keeps trying to supplement iron when it’s the B-12 deficiency that is causing the red blood cells to not mature¬†or function properly. So, why is this important to me and ALL people with Lyme disease?

There are many reasons why someone can have B-12 deficiency. Diet (low in meat or nutrition in general- in my relative’s case, not having an appetite and not wanting to cook- so malnourishment also played a role, as it does with many seniors), genetics (some family lines¬†could be¬†prone to B-12 deficiency or¬†maybe physiologically need more than others), adrenal¬†burnout (which all of us with chronic illness have some degree of, Lyme and coinfections for sure!!!), stress and trauma (again, triggers adrenals which utilize B-12 to make cortisol at a higher rate, also disrupts absorption because stress¬†interferes with¬†normal digestive processes), taking antacids (lack of HCl in the stomach prevents proper absorbtion of B-12, especially acid blockers), drinking more than 4 cups of coffee per day (many people who are chronically fatigued and have lack of energy do this just to get by- me, if I drank coffee at ANY time of day/night, I’d NEVER sleep, LOL!), as well as taking other medications that deplete the levels of B-12 (including Metformin/Glucophage for diabetes as mentioned above, ***birth control pills***, STATINS to lower cholesterol, antibiotics such as the “-CYLINES” like Doxycycline, Tetracycline, etc… interfere with absorption if taken together, and medications for treating cancer and controlling seizures).

Even eating enough meat isn’t a foolproof way these days to get enough dietary B12 since the livestock are fed B12 deficient grains in most cases of modern farming practices. Grass-fed organic meat has more B12 than the factory-farmed meat most people eat by default. Another important point- even if there is enough B12 in the diet (vegetarians can get B12 from animal sources such as milk, yogurt, eggs, cheese, whey powder and yeast extract spreads such as “Marmite”- vegans, it would have to be supplemented and not sure there is a reliable non-animal source for B12?), having taken many rounds of antibiotics can wipe out the gut flora and disrupt absorption of natural B12. This applies to me, and most people who have been diagnosed with Lyme and/or other tick-borne co-infections.¬† I’ll write more on this later, because there are entire BOOKS written on B12 deficiency- such as “Could It Be B12?: An Epidemic of Misdiagnoses.” Substitute “B12” with “Lyme Disease”, hmmm… Ring any bells?

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B12 is SO important¬†for over 100 chemical reactions to occur within the human body. It is VITAL for proper functioning of the immune AND the nervous system- the 2 areas that Lyme hits the hardest. B12 is imperative for proper energy levels &¬†strength,¬†cognitive functioning, emotionally stability and mental health, healthy nerves, cardiovascular health, proper adrenal function (which affects ALL hormones)- and the list goes on and on… In researching B12 deficiency to try and help my family member, I have run across something my family AND Lyme MD have never tested or mentioned, despite so many of my symptoms that overlapped from Lyme to B12 deficiency. Migraines, insomnia, depression, allergies, asthma, aches and pains (especially in the cervical spine), memory and concentration problems, fatigue and low endurance- again, the list goes on and on.

So- I ran out to the local health food store today and got a bottle of sublingual B12, with B-complex (they all work synergistically), today. The ongoing stress caused¬†by having a¬†sick family member has been taking it’s toll- many sleepless nights or waking up worrying.¬†Even though I had been taking a B-complex AND P5P (the active form of B6, mentioned in my earlier Pyroluria posts), the amount of B12 in the B-complex was only 50 mcg: just a fraction of what I read is necessary for someone who has probably had a B12 deficiency for years, if not decades (yes, you can be born with it, if your mother is also deficient- my mom most likely is, as well). For all I know the B-complex I’ve been taking isn’t even bioavailable!?!!! ūüė¶ Sigh.

Sublingual B12- Click to open in new window

Sublingual B12

So, the supplement I got and took 2x today is: Solgar Sublingual Liquid B-12 with B-complex, 2000 mcg, Gluten/Wheat/Dairy free, and suitable for vegetarians ¬†***I no longer can recommend this product, edit 3/21/15, SEE NOTE***, (I am not a vegetarian, but have been in the past, for 6 years as a teenager- and I never felt worse until I started eating meat, again- now I know why, at least partly!). It got very good reviews on Amazon, but the reason I purchased this type¬†of B12 (cyanocobalamin- there are at least 4 other forms I have read about) is because of the delivery- sublingual, meaning it will be absorbed in the mouth if held under the tongue. This bypasses the digestive system, in case there is an absorption problem in my gut. Since treating Lyme and taking probiotics, as well as going off of dairy, gluten, GMO foods (soy, wheat, corn, etc…), and sugar, my digestion is 90% better than it was 5 years ago, but I wanted to be sure the B12 would become bioavailable ASAP. I will research the different forms and delivery systems more, but for now, this seemed to be the quickest way to see results, apart from B-12 injections.

One of the first things I noticed within an hour of taking the first 2000mcg under my tongue was that I started yawning and feeling more relaxed than I had in days! B-vitamins in general help with this, because they are so essential in helping the nervous system and body deal with stress, but I was astonished at how much relief I felt within 30-60 minutes. A few hours later, I took another 2000mcg, and experienced another wave of stress-relief and relaxation… Best $12 I’ve spent in a long time! What I’m hoping is that taking¬†B12 will help me resolve my most persistent symptom that predates Lyme (unless I was born with it, no way to know- but I was a pretty sick baby and kid)- the dreaded chronic INSOMNIA. It’s gotten a LOT better, since treating Lyme, BUT- any amount of stress can cause me to be up all night, or fall asleep and then wake up 2 hrs later, not able to go back to sleep… I will keep you all posted as time goes on and I have a chance to¬†keep taking this new supplement.¬† I am hopeful because… (drumroll, please)… B12 is necessary for the body to produce melatonin!!! It also helps the body turn off melatonin production in the morning, to help increase wakefulness and¬†boost energy levels. Low levels of melatonin and low levels of B12 often go hand-in-hand.

B-vitamins can also increase energy levels and help combat fatigue, so I will¬†NOT be taking my last dose right before bed! ūüėČ As I gain more experience taking B12 and do more research, I will report back with what I learn. One more symptom I have had that predates Lyme/Babesia is SAD or Seasonal Affective Disorder. B12 is also supposed to be helpful for this as well! MANY people in my geographical area have SAD. I am seriously eager to see this mood disorder resolve itself. Interestingly, my relative w/the B12 deficit also has suffered from sleep trouble and SAD! As much as I hate my dear 90 year old relative suffering from B12 deficiency, it has caused me to realize that I am most likely dealing with it, myself-¬†but definitely to a lesser extent. Over time, B12 deficiency can cause irreversible damage to the body, along with the pernicious anemia it causes- and can even be fatal (causing heart attacks and strokes, to name a few ways it can lead to death)!

Blood tests aren’t always accurate in diagnosing the deficiency (hmmmm… sound familiar?), so I’m choosing to supplement now and see how my symptoms improve.¬†Lab tests haven’t done much for me, but I know they do help some people. In my life, time and money are of the essence, and I don’t have any surplus of either to waste on tests that may or may not be helpful… Being sick has wasted enough of my time and other resources. Also, my MD is backlogged from a personal injury and having to take many months off work for therapy, so it would take months to get in to see him. Of course, I suggest that you do your own research on B-12 and go talk to your doctor about it.

A lot of Lyme patients are already getting B-12 injections or taking B-12 supplements. If you are- you’re ahead of the game!!! Let me know what works for you! From everything I’ve read so far, B12 is water soluble (like Vitamin C) and therefore, if¬†my body has a surplus, it will be excreted through urine. The Linus Pauling Institute says that B12 is non-toxic even in high doses, so there is no upper limit of non-intravenous (oral, sublingual, etc…) supplementation. Good to know! ūüėČ

***NOTE: This product has several preservatives and also “Natural Flavor” which can cause histamine reactions in some sensitive individuals, including one of my family members. Click here to read post about “Lyme, B12, MTHFR & Allergies”, 3/21.¬†I can no longer recommend this product!

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Does Colloidal (ionic) Silver Create Lyme Superbugs?

No- there has been no report or evidence to show that silver creates any resistance or immunity in the pathogens which are killed by it. Properly made, in my experience, there is no argyria (bluing of the skin) or side effects from a pure silver solution <30ppm (not above 30ppm, to prevent clumping or agglutination of silver ions, which create a less effective solution by increasing the particle size, thereby decreasing penetration power). The mechanisms by which silver kills pathogens are much like suffocation, or a decrease in cell respiration, leading to death. This is not something towards resistance may be built.

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In Remission from Lyme disease after 4 years of Colloidal Silver

Right now, I’m working with FasterEFT (much better and different than the original “Tapping” or “Emotional Freedom Technique”). Looking back, I can see that I have been symptom free except for periods of extreme stress- I am dealing with PTSD from childhood and have been working to heal that, as well. My belief is that in my case, it was the trauma, abuse, and PTSD which laid the foundation that Lyme/Babesia could take root in. ALL infections are opportunistic, waiting for stress or trauma to weaken the host’s immune system. This is why some people can be infected but asymptomatic… And they might remain that way for a lifetime and never even know they are infected, although they are carriers and probably vectors (through blood and sexual contact) of the disease-causing organisms (much like people who are vaccinated with live strains of pathogens). Or, an extreme stress or trauma may occur- the loss of a loved one, divorce, a car wreck (even a seemingly minor one), getting fired, filing for bankruptcy, etc… Then, the immune system is weakened and the stealth pathogens take the opportunity to strike the host’s body, so the symptoms emerge. The symptoms may come days, weeks, months or even years after infection, because the bacteria/viruses/fungi/parasites could have been held in check up to that point by a healthy & well-functioning immune system.

So, my stress levels have drastically decreased, due to a lifestyle change initiated by me (namely, avoiding dramatic situations and people). Having no symptoms in this time period has caused me to reflect back, and without having kept a symptom journal- I can see how stress-related my symptoms have been. In fact, I can’t remember when I last had pure Lyme symptoms… It is really impossible to tell. I just wish I’d made these changes sooner- but this is part of the gift of Lyme (and I want to see it like a gift, as it says in the Bible that God uses all things for our good- whether or not we can see how). Sometimes it makes us look at our lives and HAVE to make changes that are good and healthy for US, even if others do not approve of or appreciate them. Those who truly love us DO want what’s best for us.

FasterEFT (see videos in my last post) is helping me heal the stress and trauma caused by decades of repeating patterns that I learned at least as far back as childhood- maybe even further back than that? It is a tool to get to the ROOT of any disease or problem (not even health-related). It clears dysfunctional thinking patterns which cause negative emotions, and those emotions can wreak havoc on our bodies, our minds, and our well-being. There are so many free videos on youtube and the website fastereft.com, I’ll have a lot to work with. The regular tapping (EFT- Emotional Freedom Technique) that I had been trying off and on for years just didn’t quite work as well as this modified and simpler (quicker) version. I’m sharing this information with all¬†of you, in case it can help anyone. Anyone can benefit, with or without Lyme disease or a co-infection. We all have flawed ways of thinking that are holding us back and causing some kind of pain or suffering in at least one area of our lives (but probably more- that’s just part of being human!).

So, finally- I can say I’m in remission from Lyme. I will stay on a maintenance dosage of silver until I know it is safe to stop- I cannot afford a relapse. Silver is so easy and affordable to make, it really doesn’t matter to me how much longer I take it. There are no side effects, so I’ll be praying for guidance to let me know when it’s time to stop. Until then, I’ll be clearing patterns and strengthening my immune system, as well as achieving a happier and more peaceful quality of life by improving my thoughts, my belief systems, and my emotional state. And, I no longer consider myself a “Lymie”. I refuse to be identified with this or any disease, which I believe can be a dangerous thing for those of us who really want to get well and stay well. My focus from here on out is on health and wellness, joy, peace and all the good things God intended for me and for you! ūüėČ

I hope the information on this website has been helpful and I wish you luck on your healing journeys. Anything else I find that helps me achieve better health and well-being I will share here for you. From this day forward- I consider myself living Life after Lyme, and I’m going to do my best to make the rest of my life the BEST of my life!!! ūüôā

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FasterEFT curing Lyme disease, Electromagnetic and Multiple Chemical Sensitivities, Chronic Fatigue, & Allergies,

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